Category Archives: Fibromyalgia

Fun like you are a kid except you are a growup

I had the best time at freshmeat today! We played this game at the end where we all skated around like crazy trying to dodge the people who were “it” and if you got tagged you had to take a knee, lie down like a sausage and couldn’t get up again until two more people came and lay down either side of you to make a bun, like a hotdog. The people who were “it” were trying turn so many people into sausages that no one was left standing. I honestly don’t thing I have ever had so much silly kiddish fun in the whole of my adult life!

Forget the bruises, I wonna be a sausage!

The best thing is that all the care and concern I usually take to my skating just went out the window! I normally obsess over what my feet are doing and try really hard to perfect every stride, which is important to think about, but learning to skate on instinct is vital too. As the game started I just threw my self around and went as fast as I could, and becoming a sausage or a bun was just awesome, I threw myself on the floor skidding along on my pads with out a second thought, I don’t think I have ever done something like that before, even as a kid, I was always to scared of getting hurt.

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Sweaty smiley me and the ever fresh-faced Kim Pain after practice today

The skate train: learning to push with my feet

I made some real strides with my skating today (pun intended) when doing a drill where we stood “in a train” of two or three people, arms out, knees bent and holding the hips of the person in-front. The skater at the back had to “skate” and those at the front had to stay still/steer. This really made skating “stick” with my for probably the first time: I suddenly felt like I got how to do it.

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Sunny skies on the way home, to match my mood

Sticky skating: knees then feet make better lemons

We did sticky skating today as well, I struggled a lot with it as always, especially as I forgot to put my insoles in which makes like I am braking when I try and glide my feet back together.  One tip which I found out is to point my knees where I want my feet to go, rather than thinking about my feet so much. This made a big difference to me. But I really need to remember to wear my insoles next time and work on the strength of my inner tights and groin, cause man, that skill is hard!

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My post skating festival: big meal (high in anti-inflammatory foods) with Gillmore Girls and a nice lie down for desert!

Appointments galore: attacking fibromyalgia, once more with feeling

Things are finally on the move again health wise, having trialled and axed two types of medication (who needs to have hallucinations on top of chronic pain right?!) I am getting to the good stuff of physiso and occupational therapy and more. I will keep you posted on what happens over the next few weeks… I have a LOT of appointments!

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My full throttle medical schedule

Rollerderby: medical treatment for the more belligerent invalid

The melodrama of my health problems continues, and finally I have a diagnosis which explains a big group of my symptoms. The symptoms being the chronic pain and the diagnosis being fibromyaglia.

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“Fibromyalgia (FM) is a medical condition characterised by chronic widespread pain and a heightened pain response to pressure. Other symptoms include feeling tired to a degree that normal activities are affected, sleep problems, and troubles with memory” – Wikipedia

The diagnostic process involves ruling out other conditions (such as arthritis) and the presence of a distinct pain-point pattern.

Naturally, for a contrary lady such as myself, fibromyalgia is controversial condition inspiring lots of  disagreement within the medical community. It even has an accompanying band of trolls, haters, deniers and conspiracy theorists on the internet! Goody.

Offal’y lucky lady 😀

I have so far been very lucky though, I have seen a good rheumatologist, have several amenable doctors at my local surgery and I have already had, pre-diagnosis, some really helpful treatments like insoles and physiotherapy from a specialist department which is just up the road.  Also, I now officially don’t have gout after all! Whoop!  I can now eat as much offal as I like… which is still none!

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Pills are a downer

I am waiting for the main bulk of my treatment to kick off, in the mean time I have been trailing some medication…. which has not gone well.

The first one they tried was Amitriptyline, an antidepressant used to treat nerve pain. The side effects I had included panic attacks, crying and regular bouts of despair.  Frankly it’s been totally shit.

I have finished that now and am just about to start on another kind called Clomipramine. Both the doctor and the pharmacist seemed hopeful that this one will be okay, but the list of side effects is just horrendous, so I am not sure how I feel about it. Even if it works, I am not aiming to stay on this long term. The primary method of controlling fibro is exercise.

Exercise  Roller Derby as a cure

I am hoping for things like hydrotherapy and additional physiotherapy from the NHS, plus a graded exercise programme and some other cool stuff I am looking into. While I am waiting for this to start, I am carrying on with my long  contemplative walks, daily gentle stretching …. and my insane quest to learn to play roller derby.

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The way I see it, Roller Derby may not be the ideal exercise for someone with fibromyalgia, but it’s exactly right for me. It motivates me!

Without Derby I probably would never have got a diagnosis, I hadn’t really taken my body and health seriously enough to even get close. It’s even hard for me to figure out how long I have been unwell for, because I have just ignored myself for such  long time I just never registered what was going on (or not going on) with my body. In this sentence I even referred to my body as being myself! Progress!

1 week till fresh meat

I have 1 week left till my sinners to winners course starts, and I really am terrified. I am scared it’s going to be total hell this time round, actually feeling, or starting to feel, what my body is telling me as I try to hold myself upright on skates… I know this is going to be hard, harder than last time for sure. It’s going to hurt.

That said, I have come a long way with my physio and I know I can do some basic things on skates now, so I have a head start on where I was last time round. So it’s… cool. I am gonna be okay.

And after I am okay… I am gonna rock!

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